This Time Last Year...

This time last year we were checking out of Children's Hospital in Little Rock after a 2 day stay.

After another procedure this summer we confirmed that he has Congenital Sucrase-isomaltase Deficiency or CSID. CSID is very rare. Only 1157 children and adults have been formally diagnosed. Cohen's case seems to be very mild although a year ago he was not gaining any weight (14lbs at 7 months) and was going to the bathroom (#2 water) with every feeding and then some. He was dehydrated and a bit lethargic. It was a nightmare. We did not know what was wrong but we trusted our gut and pushed our doctors to find out what was going on.

Where are we at today... Well, Cohen is still on the lighter side only weighing about 24lbs but he is tall... 75% for height. He still has trouble with his sugars and starches and we try to limit them. Now that he is on solid foods and not on a liquid diet he retains the nutrients that he consumes instead of well... pooping the all out. He is still a pooper... about 5 dirty diapers a day but it seems normal to me and all I know is he has come a long way from where he was at this time last year. He is so funny and so active. He doesn't seem to be affected at all by his CSID... okay only affected when he consumes larger than normal amounts of sugar like cake, and candy!