So we have been MIA for about a week now... We traveled down to Little Rock on Monday, the 8th for an appointment with a pediatric GI specialist and during our visit the doctor decided she wanted to admit Cohen to Arkansas Children's Hospital for what turned out to be an 18 hour fast to figure out what has been causing all of Cohen's diaherra! There is no nice way to describe his poop but that. Basically, Cohen has never had a real poop, just water stools. Yuck... The GI doctor decided to do the fasting because Cohen is weighing in under 15 pounds and is 7 months old so they consider this a failure to thrive and this is of concern and the cause of his failure to put on weight is his cronic pooping. After two days in the hospital and lots of test they determined that Cohen has a very unique protein difficieny called Sucrase Isomaltase Dificiency. Basically he was born without the enzyme to be able to digest table sugar and sucrose which we all know is in everything.
It will be challenging but he will probably be heathier than most kids because of this. For me it is sad to think that he cannot have the guilty pleasures in life like birthday cake, Halloween candy, Christmas cookies or ice cream on a hot summer day. I am sure as I do research and meet with nutrionists we will all learn how to get around some things but Jeremy and I have both decided that we will alter our life style too to make sure he is not the only one going without the guilty pleasures and some of just the regular day-to-day foods that we all consume.
The important thing is that he is putting on weight, and he is happy and healthy. We are happy to be home!
7 comments:
Oh, poor little guy! Glad to hear he'll starting packing on the pounds now! :)
I'm so glad you've finally figured it out! I'm sure there's plenty of stuff he'll be able to indulge in! Please give him big kisses for me! He is SUCH a brave boy! XOXO
Our little peanut will now start his road to recovery, gaining weight and growing at a normal baby pace. This is a challenge but at least you know the culprit. Between research and nutritionist there will be many foods to subsitute without sugar. These pictures broke my heart, I can't image what it was like for you two. Big Hugs, Lots Of Love Cohen you are a trooper!
In my prayers ...
Poor little dude =(
I'm glad you know what the cause is though! He's still a cute little peanut =)
and the etsy thing, yeah, i've bought some stuff off there. my mom knows a lady who owns an overpriced boutique and some of the tututs are going there, so we'll see how that goes...
Hope everything else is going well, love ya!
Jessica
So glad to hear things are getting better. cant wait to see you guys over the holidays
hi there!
i just looked at your blog and saw the poor little guy! so sorry alicia and beach.. but am so happy they finally figured out why cohen is such a little peanut. bennett's twin's girlfriend has her masters from bastyr in nutrition. i will get any and all info from her about alternative diet/medicine? she is great and would be awesome to get some info from... see you guys shortly.
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